On Saturday I went with my two best friends, Molly and Elaine and I got my second tattoo. I am so happy I got it. It is a paw print on my foot. I love my dogs so much and just love all animals in general I wanted to get it. After transplant they advise [...]
I am out of the hospital! I got out on Tuesday. I haven’t done a whole lot since I’ve been home. I left the hospital at exactly 3 weeks and I still am not feeling great. I can tell I’m getting sicker and sicker every admission. I didn’t even do a PFT when I left [...]
So much has happened since I posted last. I am sorry it has taken me so long. I have not been feeling well, that’s why I’m just getting around to it. My birthday went great. My family and I went to Jag’s for dinner. My parents got me a Tiffany’s ring. I was so shocked. [...]
I got out of the hospital yesterday (Friday 3/16). My shoulder pain is gone. I still take Aleve every now and then, but it is gone. It just disappeared. I am so happy it went away because it hurt really bad and impacted the way I was breathing. I am so happy to be home. Mom [...]
The Shamrock Shuffle went really well. Thank you to those that went and supported me! I really do appreciate it! I had a lot of fun, even though it was cold. I got a pass from the hospital to go to the Shamrock Shuffle, then we went to lunch at the Cornerstone Cafe, then we [...]
Sorry I have not posted in forever! Whats new with me, well… I got out of the hospital February 13th and now I am back in the hospital already. I came in on Friday (March 2nd). I just wasn’t feeling well and my birthday is coming up soon and I have never been in on my birthday [...]
So I am back in the hospital. I came in Monday. I have started this new inhaled medication called Cayston, it was helping me a lot at home. I was running low on the med so I called them to get it refilled and it took 5 days to get it to our house. So [...]
Sorry I have not posted about Cleveland until now! Thursday was an early morning because I wasn’t allowed to eat 4 hours before my CT scan. I had my first appointment at 9am. I first had a PFT then a blood gas drawn and then a 6 minute walk test. My PFT was the same, it [...]
My parents and I are all hitting the road again and going back up to Cleveland for another appointment. In September I was hoping not to have to go back for another appointment. Well I guess that didn’t happen. I am upset that we are going back for a regular appointment and not for my lungs or a post [...]
Happy New Year to everyone! The Nutcracker was great! My grandma, mom and I all had a great time and enjoyed the show. Grandma bought me a nutcracker ornament which I love! I had a great Christmas! Thank you to everyone who made this Christmas so special! I had a great day spending time with [...]