Alicia still continues to improve every day. She is able to be lifted to a chair and sit for about an hour. She definitely gets tired just doing that. She is able to use her phone to text a very very small amount. Texting too much does again wear her out and she gets frustrated. She is not able to talk yet with the trach in so calling her is out right now. They tried to use a trach collar and have her speak but it was too much for her and she could not do it. She also was on the trach collar and felt short of breath at one point but she was able to keep herself calm without having a panic attack. I keep getting asked… “is she soooo excited about her new lungs?” Well right now she is trying to focus on recovering from a big surgery so her main focus is: when will the pain of chest tubes stop, when can I get water, and other basic needs! This is probably similar to an open heart surgery – someone does not just sit up and say “wow I feel great lets go!” Anyway, we appreciate everyone’s concern and nice words on her blog and facebook. Also, anyone texting me, do not be disappointed if I do not respond (this is even for my own family) since my texts can get full easily and then I stop receiving texts. I will not get texts until I empty my box! Also the more she is awake, which is a lot now, the busier I am. One complication at Cleveland Clinic is this hospital has never had her as a patient so they are constantly asking about her past history. If I step out of the room I generally cannot be gone long or some doctor will be looking for me. My goal now with her more awake is to post every few days.
Mary Kay (mom)